Conditions and Diseases
- 62
- The Hirschsprungs & Motility Disorders Support Network
- Provides information and support to parents of children with these conditions. Includes related journal articles in PDF format.
- 63
- Apert International Inc.
- Charitable organization set up to provide direct financial and emotional assistance to families affected by Apert Syndrome. Donations welcomed.
- 64
- Teeter's Page
- A family support network for people affected by Apert syndrome and other craniofacial disorders.
- 65
- Cleft Advocate
- Provides education, inspiration, support and understanding for parents and families. Also offers insurance and advocacy information.
- 67
- Cleft Lip and Palate Association of Ireland
- An Irish voluntary group providing support and information for parents of children with cleft lip and palate and those directly affected.
- 68
- Cleft Palate Foundation
- Provides information and support and runs Cleftline, a toll-free service providing information to callers about clefts and other craniofacial anomalies.
- 69
- Cranio Kids
- Group started by a mother and father looking for information on craniosynostosis. Offers fun, friends and craniosynostosis support. Includes a forum and blog.
- 70
- Parents of Children with Craniosynostosis (PCC)
- Offers information and support about craniosynostosis. For families in Eastern Idaho and parts of Utah.
- 71
- Langer-Giedion Syndrome Association
- International network of families and professionals providing information and support to people affected by this condition. Provides contact details and links to resources.
- 72
- The Romberg's Connection
- International support group for families whose lives are affected by Romberg's syndrome.
- 73
- Stickler Syndrome Support Group
- Information and support for people affected by Stickler Syndrome. UK-based, but with international links.