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Langer-Giedion Syndrome Association

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Description: International network of families and professionals providing information and support to people affected by this condition. Provides contact details and links to resources.
(also Trichorhinophalangeal Syndrome, Type II or Type I) Langer-Giedion Syndrome Association Langer-Giedion Syndrome (also known as Trichorhinophalangeal Syndrome, Type II) is a multi-system disorder involving the deletion of at least two genes on the long arm of chromosome 8 (8q24.11). In 1997, this international organization founded for people affected by LGS and Trichorhinophalangeal Syndrome, Type I (a milder condition). Includes over 30 families from around the world affected by LGS, and more than 10 affected by TRPSI.
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Contact Information

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WEBSITE Info

Page title:Langer Giedion Syndrome
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Description:
IP-address:169.147.4.30

WHOIS Info

NS
Name Servers: NS3.KUMC.EDU 169.147.4.13 NS4.KUMC.EDU 169.147.4.14
WHOIS
Date
activated: 16-Nov-1994
last updated: 30-May-2003
expires: 31-Jul-2014