Neurological Disorders
- 421
- Pain Pal's RSD Support
- Offers information, support by providing a daily digest, message boards, chat rooms, media campaign and RSD database.
- 422
- RSD Hope Teen Corner
- A support group for children and teenagers with Reflex Sympathetic Dystrophy. Includes a message board, chat room and a writers corner.
- 423
- RSD/CRPS for Southern New Jersey and Other Areas
- Support site for those suffering from Reflex Sympathetic Dystrophy. Includes links, a personal story, great doctors and a message board.
- 424
- RSDHope College Quad
- A site built by and for college students suffering from Reflex Sympathetic Dystrophy. Read stories from sufferers and get advice from those who are dealing with this disease.
- 425
- Elizabeth's Page
- Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
- 426
- Our SMA Angels
- Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
- 427
- SMA Support Inc.
- A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
- 428
- Acoustic Neuroma Archive
- Informational site by and for acoustic neuroma patients with advice, news, stories, directories and links.
- 429
- Acoustic Neuroma
- Patient education page including symptoms, causes, treatment options, illustrations and a link to a patient story, provided by Dr John Tew of the Mayfield Clinic.
- 430
- Acoustic Neuroma Association
- Nonprofit organization providing information and support to patients.
- 431
- Acoustic Neuroma Journey
- Provides information for acoustic neuroma patients to decide which treatment option is the best; wait and watch, surgery, or radiation. Includes links, staging, diagram, mailing list, and surveys.
- 433
- MyAcoustic.Org
- A personal account of researching treatment alternatives for acoustic neuromas. Includes Francesco's personal experience with Cyberknife treatment and recovery and tips and resources for new patients.
- 434
- Patient UK: Acoustic Neuroma
- Factsheet on these usually benign tumours, their epidemiology, presentation, differential diagnosis, investigations and management.
- 435
- The Department of Neurological Surgery: University of Pittsburgh.
- Acoustic neuromas (vestibular schwannomas) treatment options discussed including surgery, gamma knife radiosurgery and fractionated radiotherapy. Statistics, links and reference list provided.
- 436
- Batten Disease
- Wikipedia article explains what it is, symptoms, history, inheritance factors, diagnosis, and treatment. Includes links to additional information.
- 437
- Batten Disease Support and Research Association
- BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
- 438
- NCL Resource: A Gateway For Batten Disease
- Information for families and professionals interested in, or affected by, this disease or neuronal ceroid lipofuscinosis (NCLs). Includes what it is, genetics, research, treatment, and family support.