Genetic Disorders
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- Tildonk Fights Cystic Fibrosis
- Site by a family from Belgium with a son with CF. Information on support from their community and fund-raising efforts. In English.
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- HealingWell Cystic Fibrosis Forum
- Active message board and chat for caregivers and individuals with Cystic Fibrosis. Share support, give advice, or offer coping skills. Moderated by volunteers.
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- A Wish for Wendy
- Softball tournament benefiting Cystic Fibrosis research in honor of Wendy Carol Lipman who died 15 days after birth from cystic fibrosis.
- 105
- Team Trevor
- Trevor, now 5, was diagnosed with Cystic Fibrosis when he was 5 months and his medical conditions are costly. Find out how to donate or volunteer to find a cure.
- 106
- Boomer Esiason Foundation
- A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.
- 107
- Breathe for Britt Fondation
- Set up in memory of Brittany F. Braun who died in 2008. BFBF assists children and adults who suffer from cystic fibrosis by providing special gift packages containing appropriate items for the patient’s comfort and enjoyment.
- 109
- Chicago Cystic Fibrosis Awareness Day
- Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives.
- 110
- Child Health International
- CHI aims to improve healthcare for children, especially those with cystic fibrosis. Includes information on the organization and its projects, mainly in Eastern Europe.
- 111
- Cochrane Cystic Fibrosis and Genetic Disorders Group
- An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
- 112
- Concerned Friends of Cystic Fibrosis in Israel
- Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information.
- 113
- Cystic Fibrosis Worldwide
- Organization seeking to aid people born with cystic fibrosis around the globe. Includes information on the disorder, programs, publications, fundraising, member associations and the CFW Network.
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- Elizabeth Nash Foundation
- Supports causes reflective of Elizabeth Nash's interests and values with a specific emphasis on efforts that improve the lives of those affected by Cystic Fibrosis.
- 115
- European Cystic Fibrosis Thematic Network
- Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the industry.
- 116
- Michigan Pulmonary Disease Community, Inc.
- Provides information, support, and advocacy for children and adults with Cystic Fibrosis. Includes adult support group, hospital CARE packages for children, scholarships, newsletter, and list of Michigan CF centers.
- 117
- National Cystic Fibrosis Awareness Committee (NCFAC)
- Helps to advance the public awareness of the genetic disease. Mission statement, support groups, fundraising and message boards.
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- New Jersey State Organization of Cystic Fibrosis
- NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a questions and answers, news, services offered and coming events.