Genetic Disorders
- 101
- Boomer Esiason Foundation
- A resource for those affected by this disease. Includes details about the organization, fund raising, events and a newsletter.
- 102
- Breathe for Britt Fondation
- Set up in memory of Brittany F. Braun who died in 2008. BFBF assists children and adults who suffer from cystic fibrosis by providing special gift packages containing appropriate items for the patient’s comfort and enjoyment.
- 104
- Chicago Cystic Fibrosis Awareness Day
- Provides information about the annual educational awareness day for people with CF and their families living in the greater Chicago area. Includes links, clinical trial and archives.
- 105
- Child Health International
- CHI aims to improve healthcare for children, especially those with cystic fibrosis. Includes information on the organization and its projects, mainly in Eastern Europe.
- 106
- Cochrane Cystic Fibrosis and Genetic Disorders Group
- An international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
- 107
- Concerned Friends of Cystic Fibrosis in Israel
- Charitable organization that helps families in Israel who have a member suffering from CF. Includes news, medical equipment needed, and donation information.
- 108
- Cystic Fibrosis Worldwide
- Organization seeking to aid people born with cystic fibrosis around the globe. Includes information on the disorder, programs, publications, fundraising, member associations and the CFW Network.
- 109
- Elizabeth Nash Foundation
- Supports causes reflective of Elizabeth Nash's interests and values with a specific emphasis on efforts that improve the lives of those affected by Cystic Fibrosis.
- 110
- European Cystic Fibrosis Thematic Network
- Creates a platform for scientists involved in fundamental CF research, for the more than 160 genetic diagnostic laboratories, for CF associations of families, patients and clinicians, legal experts and representatives of the industry.
- 111
- Michigan Pulmonary Disease Community, Inc.
- Provides information, support, and advocacy for children and adults with Cystic Fibrosis. Includes adult support group, hospital CARE packages for children, scholarships, newsletter, and list of Michigan CF centers.
- 112
- National Cystic Fibrosis Awareness Committee (NCFAC)
- Helps to advance the public awareness of the genetic disease. Mission statement, support groups, fundraising and message boards.
- 113
- New Jersey State Organization of Cystic Fibrosis
- NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients and their families. Includes a questions and answers, news, services offered and coming events.
- 114
- Reaching Out Foundation
- Provides information on the programs provided by this foundation, a personal story of a person with CF who had a double lung transplant, general information on CF, and how you can donate.
- 115
- Targeted Nutritional Intervention (TNI) in the Treatment of Children and Adults with Down Syndrome
- Scientific article explains the principles behind its use, and includes treatment protocols, and an expanded bibliography.
- 116
- Association of Greater Cincinnati for Down Syndrome
- Information on the programs they offer, and upcoming events.
- 117
- Connecticut Down Syndrome Congress
- Dedicated to improving the lives of persons with Down syndrome. Includes information on scholarships, and resources.
- 118
- DSAOC- Down Syndrome Association of Orange County
- Down Syndrome Association of Orange County, based in Santa Ana, California.