Genetic Disorders
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- National Down Syndrome Society
- Not-for-profit organization supporting research in the United States. Includes details of education and advocacy programs.
- 143
- Riverbend Down Syndrome Parent Support Group
- Resources and abstracts for parents and professionals on communication, early intervention, therapies, medicine, literacy, medical issues, mathematics, vitamins and other supplements.
- 147
- Noah's Dad
- A blog about Noah, Down syndrome, his family and the videos, pictures and facts that tell their story.
- 149
- Down Syndrome in the Broward County Community
- Local information for parents and families with children who have Down syndrome. Specifically in the Broward County area of the State of Florida.
- 150
- Down's Syndrome Association, London Branch, UK
- Support group for parents and carers of people with Down's Syndrome.
- 151
- Downright Special
- Based in Hull, East Riding of Yorkshire, England, and offering support and advice to parents on all aspects of caring for a child with Down Syndrome.
- 152
- Gold Coast Down Syndrome Organization
- In Palm Beach county, FL. Provides a FAQ and inclusion information.
- 153
- Jersey Shore Down Syndrome Association
- Aims to increase awareness, encourage advocacy and promote inclusion of all people with Down Syndrome. Includes information on the association and the condition.
- 154
- Knowledge and Information about Individuals with Down Syndrome
- KIIDS is a non-profit organization based in Southern New Jersey. Its purpose is to help support and educate new parents of babies with Down Syndrome. Find a calendar, contact details, and how to get involved.
- 155
- PODS: Parents of Down's Syndrome
- Support group based in Barnet, North London, UK. Includes information and members' experiences.
- 156
- Uno Mas Down Syndrome Online
- Supportive online group of parents and friends of kids with Down Syndrome. Message Boards and Personal Stories. Hundreds of photos.
- 158
- Ambry Genetics
- Testing for CF mutations. Offers screening of CF mutations, plus Poly T Variant analysis, and direct DNA sequencing of exon.
- 160
- NPR : Laura Rothenberg Remembered
- Reporter and producer Joe Richman first met Laura Rothenberg when he began recruiting young people to contribute to his "Radio Diaries" series. Rothenberg died March 20, 2003 at age 22 after a lifelong struggle with cystic fibrosis, but left behind insights about her own mortality and a life worth living. Offers "My So-Called Lungs" - the documentary featuring Rothenberg's diary entries - first heard on NPR in August 2002. (March 24, 2003)