Genetic Disorders
- 21
- CysticFibrosis.com
- Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
- 22
- MedlinePlus: Cystic Fibrosis
- A source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.
- 24
- Articles on Communication
- How parents can teach their children with Down Syndrome to talk and communicate effectively.
- 25
- Down Syndrome
- A family site providing links and information on specific treatments and general therapies, with movies of their affected child.
- 26
- Down's Syndrome Medical Interest Group (UK)
- Information for healthcare professionals, including UK-specific growth charts, guidelines, and medical information library.
- 27
- Growth Charts for Children with Down Syndrome
- Charts included are for height, weight, and head circumferences. Printable.
- 30
- The PREP Program
- A school and resource centre. Includes descriptions of what they do with toddlers, school-aged children, and teens. Also included are their fees.
- 32
- World Down Syndrome Day
- Promoting 21st March as world down syndrome day, chosen for the trisomy of the 21st chromosome.
- 33
- Health Care Management of Adults with Down Syndrome
- Article by Dr. David Smith. (September 15, 2001)
- 34
- Floating Harbor Syndrome Support Group
- Provides a description of symptoms, photographs, newsletter and contact details.
- 36
- FRAXA Research Foundation Home Page
- Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
- 37
- Fragile X Association of Southern California
- Aims to promote public awareness, to support scientific research and to provide a forum for families of children with this disorder to meet and share their ideas, concerns and problems.
- 38
- Maryland Fragile X Resource Group
- A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.