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European Organisation for Rare Diseases

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Scan day: 02 February 2014 UTC
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Description: Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe.
EURORDIS - The Voice of Rare Disease Patients in Europe RareConnect welcomes its 50th community! Rare Disease Day 2014 Ambassador EURORDIS 2014 Priorities and Perspectives A social network of Rare Disease Communities led by NORD and EURORDIS in partnership with leading disease-specific patient groups.
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Page title:EURORDIS - The Voice of Rare Disease Patients in Europe
Keywords:rare disease, maladies rares, genetic disease, orphan drug
Description:EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing more than 400 rare diseases patient organisations in over 40 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe
IP-address:54.247.66.90