The Sanfilippo Children's Research Foundation
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Scan day: 13 February 2014 UTC
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Description: Canadian based charitable group founded by the parents of Elisa Linton.
Subcat: https://morefunz.com/health/conditions-and-diseases/nutritional-and-metabolic-disorders/?page=6
"A Life for Elisa" SCRF Home Page THIS IS A REMARKABLE STORY OF FAMILY, FAITH AND SELFLESS SACRIFICE... Although Elisa Linton appeared completely normal at birth, she was diagnosed at the age of four with a rare genetic disorder called Sanfilippo syndrome, Â MPS lllB, for which there is no cure or treatment. Now at the miraculous age of 19, this devastating disease is significantly claiming her life.
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Page title: | A life For Elisa |
Keywords: | Elisa, Sanfilipo, Syndrome |
Description: | |
IP-address: | 66.212.176.140 |