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The Sanfilippo Children's Research Foundation

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Scan day: 13 February 2014 UTC
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Description: Canadian based charitable group founded by the parents of Elisa Linton.
"A Life for Elisa" SCRF Home Page THIS IS A REMARKABLE STORY OF FAMILY, FAITH AND SELFLESS SACRIFICE... Although Elisa Linton appeared completely normal at birth, she was diagnosed at the age of four with a rare genetic disorder called Sanfilippo syndrome,  MPS lllB, for which there is no cure or treatment. Now at the miraculous age of 19, this devastating disease is significantly claiming her life.
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Page title:A life For Elisa
Keywords:Elisa, Sanfilipo, Syndrome
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IP-address:66.212.176.140