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European Porphyria Initiative

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Description: The mission is to present an up to date approach to the understanding of porphyria.
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Page title:European Porphyria Initiative
Keywords:Porphyria, Porphyrie, Porphyrin, Heme , Hemin, Hematin, Normosang, PBG, ALA, Variegate, Coproporphyria, Protoporphyria, AIP, Acute attack, Red urine, Abdominal pain, Skin lesions, EPI, Hepatic porphyria
Description:The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria, focusing in particular on the prevention and treatment of acute attacks, to provide information and support to families affected by porphyria, and to support and encourage medical research
IP-address:46.19.24.241

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Creation Date: 25-sep-2002
Expiration Date: 25-sep-2014