Ben's Dream
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Scan day: 13 February 2014 UTC
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Description: Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
Subcat: https://morefunz.com/health/conditions-and-diseases/nutritional-and-metabolic-disorders/?page=6
Ben's Dream - The Sanfilippo Research Foundation Benjamin Siedman has Sanfilippo Syndrome, a rare & fatal inherited genetic disorder. Ben and thousands of children like him have a life expectancy between 12 and 20 years. There is no treatment, no cure ... Only hope.
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WEBSITE Info
| Page title: | Ben's Dream - The Sanfilippo Research Foundation |
| Keywords: | mucopolysaccharidosis, mucopolysaccharide, MPS, MPS III, sanfilippo, sanfilippo syndrome, san filippo, research, children, medical, mental retardation, genetic, neuro-genetic, neurogenetic, inheritable disorder, enzyme deficiency, gene therapy, cell replacement therapy, enzyme replacement therapy, ERT, fundraising, fund-raising, charity, charitable, charities, charitable giving, contribute, donate, donate online, non profit, non-profit, not-for-profit, 501(c)(3), philanthropy, online shopping, responsible shopping, cause shopping, shop to help |
| Description: | |
| IP-address: | 192.185.26.231 |
WHOIS Info
| NS | Name Server:NS1.PMGWEBHOST.COM Name Server:NS2.PMGWEBHOST.COM Name Server: Name Server: Name Server: Name Server: Name Server: Name Server: Name Server: Name Server: Name Server: |
| WHOIS | Status: clientDeleteProhibited Status: clientRenewProhibited Status: clientTransferProhibited Status: clientUpdateProhibited |
| Date | Creation Date: 2000-10-04T15:46:12Z Expiry Date: 2014-10-04T15:46:12Z |