Nathan's Battle
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Scan day: 20 February 2014 UTC
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Description: Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
Welcome to Nathan's Battle to see the chronicle of our successes Nathan & PJ's Story Nathan is a sweet innocent little boy. He is our son and we love him dearly. When he was 4 years old, he was diagnosed with a fatal degenerative neurological disease called Late Infantile Batten disease. This disease takes no mercy on its young victims. Nathan is currently completely blind and has regressed in skills that he had once mastered. Every day he struggles. The child who once ran and played like other children now requires constant care. Nathan's future will consist of seizures, loss of motor control, as well as loss of the ability to think and reason coherently. Nathan will end up bedridden and will require a feeding tube for nourishment. The average life expectancy for a child with Late Infantile Batten's Disease is twelve years of age. It breaks our hearts to see this wonderful boy struggle so much. In appearance he looks very normal and others cannot understand why he struggles. At this point we are desperately searching for a treatment for his conditions. We are willing to do anything or go anywhere to help our son.
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| Page title: | Welcome to Nathan's Battle |
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| IP-address: | 184.168.151.8 |
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| NS | Name Server: NS25.DOMAINCONTROL.COM Name Server: NS26.DOMAINCONTROL.COM |
| WHOIS | Status: clientDeleteProhibited Status: clientRenewProhibited Status: clientTransferProhibited Status: clientUpdateProhibited |
| Date | Creation Date: 15-mar-2000 Expiration Date: 15-mar-2019 |