Neurological Disorders
- 381
- International Reflex Sympathetic Dystrophy Foundation
- Delivers information resources, puzzles, studies, articles, surveys and FAQS.
- 382
- Neurological Associates Pain Management Center
- Information about this Florida based practice and practitioners. Contains education material for RSD/CRPS patients and members of the medical community. Includes RSD puzzles and articles.
- 383
- Elizabeth's Page
- Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
- 384
- Our SMA Angels
- Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
- 385
- SMA Support Inc.
- A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
- 386
- Acoustic Neuroma Archive
- Informational site by and for acoustic neuroma patients with advice, news, stories, directories and links.
- 387
- Acoustic Neuroma
- Patient education page including symptoms, causes, treatment options, illustrations and a link to a patient story, provided by Dr John Tew of the Mayfield Clinic.
- 388
- Acoustic Neuroma Association
- Nonprofit organization providing information and support to patients.
- 389
- Acoustic Neuroma Journey
- Provides information for acoustic neuroma patients to decide which treatment option is the best; wait and watch, surgery, or radiation. Includes links, staging, diagram, mailing list, and surveys.
- 391
- MyAcoustic.Org
- A personal account of researching treatment alternatives for acoustic neuromas. Includes Francesco's personal experience with Cyberknife treatment and recovery and tips and resources for new patients.
- 392
- Patient UK: Acoustic Neuroma
- Factsheet on these usually benign tumours, their epidemiology, presentation, differential diagnosis, investigations and management.
- 393
- The Department of Neurological Surgery: University of Pittsburgh.
- Acoustic neuromas (vestibular schwannomas) treatment options discussed including surgery, gamma knife radiosurgery and fractionated radiotherapy. Statistics, links and reference list provided.
- 394
- Batten Disease
- Wikipedia article explains what it is, symptoms, history, inheritance factors, diagnosis, and treatment. Includes links to additional information.
- 395
- Batten Disease Support and Research Association
- BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
- 396
- NCL Resource: A Gateway For Batten Disease
- Information for families and professionals interested in, or affected by, this disease or neuronal ceroid lipofuscinosis (NCLs). Includes what it is, genetics, research, treatment, and family support.
- 397
- Patient UK: Motor Neurone Disease
- Factsheet on this devastating illness which leads to progressive paralysis and eventual death. Includes its pathophysiology, epidemiology, presentation, differential diagnosis, investigations, management, complications and prognosis.
- 398
- Reading and West Berkshire MND Association
- Information, news and contacts for people living with Motor Neurone Disease in Berkshire.
