Neurological Disorders
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- Torticollis, Keep Hoping
- The site describes personal experiences and offers background information.
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- Carriers and Patients with Muscle-Eye-Brain Disease Can Be Rapidly Diagnosed by Enzymatic Analysis of Fibroblasts and Lymphoblasts
- Vajsar, in Neuromuscular Disorders, describe a diagnostic technique.
- 383
- Duchenne/Becker Muscular Dystrophy
- Includes key facts and animated slide shows of causes, diagnosis and treatment.
- 385
- Living For Today, Preparing For Tomorrow
- Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
- 386
- MDA Ride For Life
- Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
- 387
- Centronuclear & Myotubular Myopathy
- British information point for sufferers and their families of these disorders and associated muscle abnormalities.
- 388
- Familial Desminopathy
- Desmin related myopathy is a disorder characterized by accumulation of desmin in the muscle cells. It can be dominantly inherited or occur spontaneously, its effects can range from mild to severe.
- 389
- About RSD
- Information of Reflex Sympathy Dystrophy, a debilitating disease of the nervous system that causes chronic pain, is progressive and cannot be cured.
- 390
- American RSDHope
- A non-profit organization providing information for medical professionals, patients and families. Features newsletters, submitted poetry, and details of support programs.
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- Complex Regional Pain Syndrome
- Patient information from the American Academy of Family Physicians.
- 392
- For Grace - Changing the World of RSD
- A nonprofit organization passionately devoted to raising awareness of Reflex Sympathetic Dystrophy in the medical community and general public. Events, information, and resources.
- 393
- International Reflex Sympathetic Dystrophy Foundation
- Delivers information resources, puzzles, studies, articles, surveys and FAQS.
- 394
- Neurological Associates Pain Management Center
- Information about this Florida based practice and practitioners. Contains education material for RSD/CRPS patients and members of the medical community. Includes RSD puzzles and articles.
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- Elizabeth's Page
- Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
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- Our SMA Angels
- Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
- 397
- SMA Support Inc.
- A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
- 398
- Acoustic Neuroma Archive
- Informational site by and for acoustic neuroma patients with advice, news, stories, directories and links.