Neurological Disorders
- 241
- A Music Camp for Those Afflicted but Gifted, Too
- New York Times feature article about the Belvoir Terrace summer music camp program for people with Williams syndrome. (August 26, 2002)
- 242
- Association of Young People with ME
- Includes phone helpline, assistance with study problems, and guide to request a disabled students allowance. A UK-based charity.
- 243
- CFIDS/Fibromyalgia Self-Help
- American non-profit organization that provides online self-management courses. Also furnishes a library of articles on coping, pacing, stress management and treatment.
- 244
- Hummingbirds Foundation for ME
- Provides an overview of known medical facts, diagnosis and basic treatment, comprehensive symptom list, research and advocacy information, and a monthly newsletter
- 245
- Invest in ME
- Independent UK charity campaigning for biomedical research. Offers conference reports, research news, media corner, and guestbook.
- 246
- Massachusetts CFIDS/FM Association
- Articles on diagnosis, coping, advocacy, treatment, and disability. Assists patients with referrals to health care providers and gives guidance on disability issues.
- 247
- National CFIDS Foundation
- American non-profit that funds research and provides information, education, and support to patients.
- 248
- National ME/FM Action Network
- Includes a quarterly newsletter, online library of articles, list of support groups, and discusses active projects. A Canadian registered charity.
- 249
- Sussex ME/CFS Society
- UK registered charity offering support through newsletters, meetings, and telephone contacts to patients in East Sussex, West Sussex, and Kent.
- 250
- The ME Association
- Practical help is offered by this UK national charity, including information on benefits and other sources of assistance.
- 251
- Waterloo Wellington ME Association
- Canadian registered charity offering coping and self-help strategies, and help with finding a physician.
- 252
- Wisconsin ME/CFS Association
- Online library with medical articles and resources for children. Access to support groups, phone support and their quarterly newsletter is for members only.
- 253
- A Christian Perspective on ME
- A personal view on the illness and what can be done about it, from a Christian point of view.
- 254
- The ME and CFS Information Page
- Features blog, essays, help with disability and insurance issues. Written by Mary Schweitzer, a former college professor.
- 255
- Whittemore Peterson Institute for Neuro-Immune Disease
- Published the initial study of a novel retrovirus XMRV involved in CFS. Furnishes info on current research program, clinical trials, and patient resources.
- 256
- Distinct Cerebrospinal Fluid Proteomes Differentiate Post-Treatment Lyme Disease from Chronic Fatigue Syndrome
- Sets of proteins unique to each disease have been found in the spinal fluid of those with CFS and post-lyme disease. (November 30, 2010)
- 257
- 25 Percent ME Group
- Offers telephone support, talking book service, group library, and advocacy to severly affected patients in the UK.
- 258
- Edinburgh ME Self Help Group
- Core activities are open meetings, informal social get-togethers, and social events/outings in and around Edinburgh.