Osteogenesis Imperfecta Information
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Scan day: 13 February 2014 UTC
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Description: Resources gathered by the mother of a child with the disease. Includes a personal page about her son Jojo, his disease, treatment, and progress.
October 2002: Visitors: please note...this site is ANCIENT! I'll update links one of these days. Go for information about Pamidronate, an effective therapy for kids with OI. My name is Carone Sturm, I live in Fairbanks Alaska, and my son, Jojo, has osteogenesis imperfecta. The following sites are some that I have found while surfing for information about OI, or "brittle bone disease." This web page is not affiliated with any official organization; it's simply a collection of information you may find of interest. You'll find my son's story under "
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WEBSITE Info
| Page title: | Osteogenesis Imperfecta |
| Keywords: | |
| Description: | |
| IP-address: | 209.112.129.41 |
WHOIS Info
| NS | Name Server: NS1.ACSALASKA.NET Name Server: NS2.ACSALASKA.NET Name Server: NS3.ACSALASKA.NET Name Server: NS4.ACSALASKA.NET |
| WHOIS | Status: clientDeleteProhibited Status: clientRenewProhibited Status: clientTransferProhibited Status: clientUpdateProhibited |
| Date | Creation Date: 18-apr-1995 Expiration Date: 19-apr-2016 |