Living With Marfans
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Scan day: 13 February 2014 UTC
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Description: This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
My name is Jon. I am a 55 year old Boston man who lives with a condition known as MARFAN SYNDROME. This website is an outline of my life and research that I have done over the last 14 years. It in no way represents all Marfan cases. Information contained in this website is intended for informational purposes only. It is not intended to be a substitute for medical advice. See your physician with any and all questions regarding your medical condition.
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WEBSITE Info
| Page title: | Home |
| Keywords: | dural estacia,Jon Rodis,National Marfan Foundatio,Living with Marfans,Living with Marfans,sunken chest,lens dislocation,fatigue,aortic dissection,Many Faces of Marfans,valve replacement,fibromyalgia,C |
| Description: | Living with Marfan Syndrome is what this site is all about. The life story of Jon, and how he has learned to cope over the years. |
| IP-address: | 209.237.152.14 |
WHOIS Info
| NS | Name Server: DNS010.D.REGISTER.COM Name Server: DNS028.C.REGISTER.COM Name Server: DNS050.A.REGISTER.COM Name Server: DNS168.B.REGISTER.COM |
| WHOIS | Status: clientTransferProhibited |
| Date | Creation Date: 23-jun-2002 Expiration Date: 23-jun-2014 |