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Canadian Marfan Association

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Scan day: 13 February 2014 UTC
39
Virus safety - good
Description: Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
2013-2014 Holiday Campaign is here! The 2013-2014 Holiday Campaign is here with a special letter from Kenzie McDonald, a young and vibrant young adult who has been diagnosed with both FBN1 and TGFBR2 mutations. Despite her diagnosis, though scary at first, Kenzie shares her story of how she overcomes her obstacles and advocates to others, "live within the limits, but don't be afraid to live." Please support the CMA by making a tax deductable donation and help us achieve our mission to improve healthcare outcomes for patients and provide education and support to individuals and families affected by genetic aortic disorders. 
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WEBSITE Info

Page title:Marfan - Home
Keywords:Marfan syndrome, Marfan information, Marfan support, Marfan treatment, Marfan research, Marfan community, Marfan education, Marfan awareness, Marfan diagnosis, Marfan clinics, Marfan youth awareness, Marfan questions, Marfan grants, Canadian Marfan patients, Canadian Marfan Association, Canadian Marfan treatment, Marfan networks, Marfan conference, Marfan news, Marfan donations,Marfan connective tissue, Marfan genetic disorder
Description:The Canadian Marfan Association (CMA) is a national charitable organization dedicated to saving lives and helping Marfan patients live a good quality of life. We are the only Association in Canada helping Marfan patients and the most reliable source for current and accurate information about Marfan syndrome.
IP-address:67.227.227.84

WHOIS Info

NS
Name servers: ns.sourcedns.com ns1.sourcedns.com
WHOIS
status: registered
Date
Creation date: 2000/09/19
Expiry date: 2014/12/22