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Renal Agenesis Surveillance -- United States

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Description: Results of a study using data from the Birth Defects Monitoring Program.
Renal Agenesis Surveillance -- United States Renal Agenesis Surveillance -- United States Based on data from the Birth Defects Monitoring Program (BDMP)*, since 1970, the reported prevalence of kidney defects coded under the International Classification of Diseases (ICD) code 753.0 has increased threefold in the United States (Figure 1). To determine whether this reflected a true increase or resulted from a change in detection or reporting practices, CDC evaluated information about cases from 590 (88%) of 674 hospitals reporting to the BDMP at least one newborn with a kidney defect coded as 753.0 from 1970 through 1983. During 1970-1978, this code was classified only as renal agenesis--the congenital absence of one (unilateral) or both (bilateral) kidneys--and during 1979-1983, as renal agenesis and dysgenesis (abnormal kidney formation). This evaluation showed that the increase in reported cases of renal agenesis actually reflected changes in reporting of other renal anomalies. These findings have implications for surveillance of birth defects and suggest that differences may exist between actual clinical diagnoses and the coding of these medical conditions.
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Page title:Renal Agenesis Surveillance -- United States
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