Hayleys Progeria Page
Edit Page
Report
Scan day: 06 February 2014 UTC
18
Virus safety - good
Description: Information and photos about a child with the rare genetic disorder Progeria. Including photographs, media articles and links to other Progeria related sites.
Welcome to Hayleys Progeria Page! This website is dedicated to our daughter, Hayley Okines who suffers from an extremely rare genetic condition called Hutchinson Gilford Progeria Syndrome, also known as HGPS or Progeria. At present there are around 74 known cases of Progeria around the world and only 4 in the UK, which is where we live. Progeria is a progressive terminal condition which mimics many of the characteristics of the normal ageing process, but faster...a lot faster...about 8 times faster in fact! A 10 year old progeria child will have the appearance of an octogenerian with symptoms including baldness, arthritis and heart problems...but with the mind of a 10 year old!
Size: 686 chars
Contact Information
Email: —
Phone&Fax: —
Address: —
Extended: —
WEBSITE Info
| Page title: | Hayleys Progeria Page |
| Keywords: | progeria,ageing,premature ageing,genetic disorders,hayley okines,hayley,progeria reunions,progeria family circle,progeria research foundation,sunshine foundation,hutchinson gilford progeria syndrome,hgps,washington dc,philadelphia,orlando,los angeles,new york,germany,london,chelsea,chelseafc, chelsea football club,fc porto,champions league,hydrotherapy,nutrini,pro-cal,vitamin e,aspirin,fluoride,children of courage,womans own |
| Description: | Information and Photos about a child with the rare genetic disorder, Progeria including photographs, media articles, links to other Progeria related sites. |
| IP-address: | 208.77.96.72 |
WHOIS Info
| NS | Name Server: NS1.HOSTMERIT.COM.NS-NOT-IN-SERVICE.COM Name Server: NS2.HOSTMERIT.COM.NS-NOT-IN-SERVICE.COM |
| WHOIS | Status: clientDeleteProhibited Status: clientTransferProhibited Status: clientUpdateProhibited |
| Date | Creation Date: 10-feb-2004 Expiration Date: 10-feb-2015 |