Ashly's Skeletal Dysplasia
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Scan day: 06 February 2014 UTC
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Description: A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites.
My Ashly's rare skeletal dysplasia Page she is 18 yrs old, class of 2011 Hi, let me first start by introducing myself. My name is Shilo, I'm the proud mother of a beautiful 18 year old young lady
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WEBSITE Info
| Page title: | My Ashly's rare skeletal dysplasia Page |
| Keywords: | geleophysic, geleophysic dysplasia, geleophysic dwarfism, dwarfism, short stature, lyosomal storage disorder, MPS, mucopolysaccharidoses, mucopolysaccharidosis, skeletal dysplasia, bones, joints, growth, genetics, claw hand, contractures, cartilage, rare disorder, hypertrophy, dyspraxia, fibrocollengenous tissue, tendons, volar plate, biopsy, camptodactyl, speech delay, child, chronic illness, metabolic disease |
| Description: | this page has information on my daughter's rare skeletal dysplasia disorder, called Geleophysic Dysplasia, also has links to related resources, and our geleophysic support group |
| IP-address: | 209.202.252.41 |
WHOIS Info
| NS | Name Server: NS1.LYCOS.COM Name Server: NS2.LYCOS.COM Name Server: NS3.LYCOS.COM Name Server: NS4.LYCOS.COM |
| WHOIS | Status: clientTransferProhibited |
| Date | Creation Date: 15-oct-1998 Expiration Date: 14-oct-2016 |