Alagille Syndrome Alliance
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Scan day: 06 February 2014 UTC
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Description: Worldwide support network for people who care about people with alagille syndrome.
The Alagille Syndrome Alliance (ALGSA) is an international nonprofit network serving people with Alagille Syndrome (ALGS) and their families. ALGS is a rare genetic disorder that affects about 1 in every 35,000 people. The genetic mutation in the ALGS gene – JAG1 – causes organs in the body to develop abnormally, especially the liver, heart, kidneys and blood vessels, and there is no known cure.
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WEBSITE Info
Page title: | About Us |
Keywords: | alagille syndrome, alagille syndrome alliance, ALGSA, ALGS, alagille, Dr. Alagille, syndrome, liver disease, liver |
Description: | The official site of the Alagille Syndrome Alliance (ALGSA). We are a support group and resource for individuals and families of individuals with Alagille Syndrome. |
IP-address: | 50.63.46.1 |