XLP or Ducans Disease Resource Site
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Scan day: 02 February 2014 UTC
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Description: X-linked Lymphoproliferative Syndrome (XLP) or Duncans syndrome. A family site with resources and news for 4 sons who suffer from this disease.
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| Page title: | TeamHartley |
| Keywords: | Hartley, Joshua, Nathan , Daniel, Luke, X-Linked Lymphoproliferative Syndrome, XLP, Duncans Disease, Bone Marrow Transplant, Duncans Syndrome. BMT, Anthony Nolan Trust, Romsey, Donor |
| Description: | In late November 2003 the 4 Hartley sons (Joshua - 12 , Nathan - 10, Daniel - 8 and Luke - 4) were diagnosed with a rare genetic conditions known as X-Linked Lymphoproliferative Syndrome (XLP) or Duncan Disease. This is very rare with only around a 100 families world wide being diagnosed (although it is believed that XLP is massively under prescribed). Without treatment it is unlikely that the boys will make it into and through their teen years. The 'cure' treatment is a Bone Marrow Transplant. |
| IP-address: | 212.48.65.46 |