Conditions and Diseases
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- Vein Of Galen
- UK parent support group providing information and resources on coping with Vein of Galen malformation.
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- Vein of Galen Malformations
- Explanation from the Toronto Brain Vascular Malformation Study Group including an illustrative vascular angiogram, its diagnosis, and treatment.
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- Glue injections help sick babies
- BBC News article featuring a mother of a toddler born with Vein of Galen malformation describing life-saving glue injections. (December 02, 2009)
- 45
- CJ Foundation for SIDS
- A national US non-profit dedicated to eliminating Sudden Infant Death Syndrome (SIDS) and Sudden Unexpected Infant Death (SUID). Provides bereavement support for grieving families, funds medical research, and promotes infant safety education.
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- Canadian Foundation for the Study of Infant Deaths
- Provides risk reduction information, research, peer support and local activities across Canada. Includes a memorial gallery, discussion forums and an online shop.
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- First Candle (previously SIDS Alliance)
- National US charity. Offers research, tips for prevention, support for families, publications, and events.
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- Hayes Foundation
- Regional subsidiary of the CJ Foundation for SIDS. Focuses on national Sudden Infant Death Syndrome (SIDS) awareness and regional parent education in Virginia.
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- International Society for the Study and Prevention of Infant Death (ISPID)
- International body dedicated to the exchange of information among scientists with experience in the field of infant health and death.
- 50
- SIDS America
- Faith based, national US charity. Offers risk reduction advice, financial and emotional support for families, prayer requests and volunteering opportunities.
- 51
- SIDS and Kids
- National Australian body that funds research, promotes reduce the risk campaigns and provides bereavement support to families. Includes brochures to download and details of fund raising activities.
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- The American Sudden Infant Death Syndrome Institute
- National US non profit organization dedicated to the prevention of sudden infant death and the promotion of infant health.
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- University of Maryland - Center for Infant & Child Loss
- Committed to increase the understanding of SIDS and other child deaths, risk reduction practices, grief, and compassionate intervention.
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- Cot Life 2000
- Discusses a theory that cot death is caused by toxic gases released from mattresses and offers suggestions for its prevention.
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- ADC: Electromagnetic fields produced by incubators influence heart rate variability in newborns
- Research demonstrating that incubator electromagnetic fields affects heart rate variability in newborn babies. Full paper is available in PDF for a fee. (May 01, 2008)
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- New Scientist: Nicotine's double link to cot death
- Article discussing research finding that nicotine not only disrupts a baby's breathing, but can also disrupt the early development of neural circuits that guard against breathing cessation during sleep. (September 10, 2002)
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- Iowa SIDS Foundation
- Affiliate of First Candle. Offer bereavement support and information to families affected by SIDS in Iowa.
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- SIDS Calgary Society
- Provides information, resources and support to parents, families, friends, and health care professionals. Based in Calgary, Alberta, Canada.