Conditions and Diseases
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- Ped-Hospice@Listserv
- For parents whose child with cancer is currently in hospice care or seeking care. Group provides support, comfort, ideas and information. Archives included.
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- Ped-Onc-Survivors@Listserv
- Discussion group for parents and family members of childhood/adolescent cancer survivors to share ideas, information and support.
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- Ped-Onc@Listserv
- Information on how to join The Pediatric Cancers Online Support Group. Includes archives.
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- Australian Kawasaki Support Network
- Creates and maintains a support and information exchange for patients and families dealing with Kawasaki disease.
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- Kawasaki Disease Foundation
- A partnership of parents, patients, and professionals. Includes fact sheets, support, parent guide, forum and resources.
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- Vein Of Galen
- UK parent support group providing information and resources on coping with Vein of Galen malformation.
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- Vein of Galen Malformations
- Explanation from the Toronto Brain Vascular Malformation Study Group including an illustrative vascular angiogram, its diagnosis, and treatment.
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- Glue injections help sick babies
- BBC News article featuring a mother of a toddler born with Vein of Galen malformation describing life-saving glue injections. (December 02, 2009)
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- CJ Foundation for SIDS
- A national US non-profit dedicated to eliminating Sudden Infant Death Syndrome (SIDS) and Sudden Unexpected Infant Death (SUID). Provides bereavement support for grieving families, funds medical research, and promotes infant safety education.
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- Canadian Foundation for the Study of Infant Deaths
- Provides risk reduction information, research, peer support and local activities across Canada. Includes a memorial gallery, discussion forums and an online shop.
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- First Candle (previously SIDS Alliance)
- National US charity. Offers research, tips for prevention, support for families, publications, and events.
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- Hayes Foundation
- Regional subsidiary of the CJ Foundation for SIDS. Focuses on national Sudden Infant Death Syndrome (SIDS) awareness and regional parent education in Virginia.
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- International Society for the Study and Prevention of Infant Death (ISPID)
- International body dedicated to the exchange of information among scientists with experience in the field of infant health and death.
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- SIDS America
- Faith based, national US charity. Offers risk reduction advice, financial and emotional support for families, prayer requests and volunteering opportunities.
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- SIDS and Kids
- National Australian body that funds research, promotes reduce the risk campaigns and provides bereavement support to families. Includes brochures to download and details of fund raising activities.
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- The American Sudden Infant Death Syndrome Institute
- National US non profit organization dedicated to the prevention of sudden infant death and the promotion of infant health.
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- University of Maryland - Center for Infant & Child Loss
- Committed to increase the understanding of SIDS and other child deaths, risk reduction practices, grief, and compassionate intervention.